Tues. Fri. 11, 2020: Health Issues Change the Game

Tuesday, February 11, 2020
Waning Moon
Rainy and cool

It’s amazing how your whole life can change in moments. Last week, it seemed to be for the better. Now, I’m facing some new challenges.

We’ll get to that.

I’m not sure why yesterday’s post disappeared instead of going live. My apologies. My intent, however, for the next few weeks is changing.

Busy, busy weekend. But the right kind of busy.

Friday was about gathering quotes for the article and starting to write it in my head. I find that shifting my process a bit to write more in my head means my first draft isn’t just blather. I carry the piece within me, thinking about it as I go through my day, working out phrasing and shaping. It makes it easier when I sit down to write.

Watching the fourth season of THE BEST BRITISH BAKING SHOW. It’s giving me ideas for my own cooking show treatment (not to star me, but something I’m interesting in creating, and also to get used to writing a non-fiction treatment). There are elements I like about the show, but the show I’m craving also does some things differently.

The weather was awful on Friday. Winds 75 mph. Much to my surprise, the power held. But I didn’t work on the computer in the afternoon or evening. I worked in longhand.

That included background notes and the partial outline for the Millie Quinn books. They’ve been part of my “back pocket document” for several years now, but they’re pulling at me. I wanted to get the basics out of my head and on paper, so it didn’t push out the stuff on which I need to be working.

Saturday, I was up early. I experimented with some breakfast pastry, and remembered why I hate working with puff pastry, especially on only one cup of coffee. I realized, as I made the whipped chocolate cream, that it had to be filling added after the baking, not something that could go into the oven (pretty basic common sense). So I basically made pastry for cream puffs, which turned out well. Unfortunately, my pastry tool that was supposed to inject the cream didn’t work. So I sliced the pastry and made sandwich-style cream puffs instead.

I tried doing a variation on a chocolate croissant, using Nutella in the puff pastry. I rolled it a little too tightly, so the pastry didn’t have room to expand in the middle, but it was okay. Not brilliant, but okay. Needs some work.

I had pastry cream in my hair before 9 AM, which gives you an idea of how it went. But that’s part of experimentation and recipe development.

Made a dump run for household garbage, and then another one for recycling. Ran into a couple of friends at recycling, which was pretty funny. It was clear and cold out, and I have my work cut out with me, clearing all the branches that came down in the storm. Friday was the first time; in the ten years we’ve lived in this house, where it didn’t feel secure during a storm.

Scrubbed down when I came home. Most of the Chewy order arrived for the cats. I didn’t expect it until Monday, and was delighted to get it early, because of the toys.

Tessa, Willa, and Charlotte each got a new catnip mouse, and they were delighted. I also got them spring toys, which I waited until Sunday to give them. I did, however, put together the laser toy so they could Chase the Red Dot. Willa and Charlotte were thrilled and ran and jumped and chased as long as I had the energy to hold the wand. Tessa had never seen it before, and had no idea what to do.

Giant load of laundry in as well.

Working on the article, shaping, seeing where I want to fold in the quotes. I had two of them back by Saturday morning, confirmation a third was forthcoming, and the contact info for the fourth. So I’m really only waiting for the quotes from London and Ireland, which should arrive today.

Worked on one of the grant proposals. I have to submit ten pages of work. I’m not sure if I should do 10 pages on a single project, or 5 on two different projects that show more range. I might send an email and ask.

I’m having trouble accessing the other grant’s information, and have to get an email off about that, too.

I want to get both grant proposals and the article out before Mercury turns retrograde on the 17th.

Worked on blog posts for the various blogs. Revised the beginning of the steampunk play, which I will use for one of the grant proposals.

The cats were hilarious. So happy with their new toys. It was the first time all three cats were genuinely happy in the same space since Willa and Charlotte joined the household. I hope this is the beginning of that being the rule, rather than the exception.

Sunday, I wrote 11 pages on one project, not something I should have been working on, of course. Sent off another quote request.

Worked on the article.

Made a smoked salmon brunch tart. Damn thing took over 3 hours. It tasted good, but the look lacked a good look. This weekend reminded me how much I hate making pastry.

Worked on writing and reading, including one of the books for review.

Over the weekend, some serious health issues accelerated. First thing yesterday morning, I went to the doctor. Who was alarmed. Who initially wanted to send me to the ER for a blood transfusion, which I refused. She did some in-office testing, and found that I didn’t really need one. But I had to go to the hospital to have an emergency ultrasound.

I was sent home to be more comfortable at first until the appointment. I used the time to work on the article that needs to get done this week. The hospital was supposed to call me with the time to come in. Hours went by, and nothing. So I called them — now, remember, I have hyperaccussis — talking on the phone is nearly impossible for me, because it causes such pain. Yet I was repeatedly forced to be on the phone because HEALTH CARE PERSONNEL refused to accommodate me.

I called the doctor — and got a third party, who got in contact with the doctor. Meanwhile, the third party told me to schedule the procedure myself. Only the scheduler wouldn’t do it. She said they couldn’t fit me in. I kept telling her that the doctor insisted it was emergency and had to be done today, and she refused. I was headed back to the doctor to find out what to do when the nurse called. She had called the scheduler and the hospital and told them it was an emergency and they had to make it happen.

I had to dash into the car, race across to the next town where the hospital was, not find parking, and then navigate the corridors for the appointment. But once I got there, radiology took me right away. They were very kind for the multiple procedures — some of them unpleasant. But it took multiple technicians at times, and I was there over an hour.

Then, I had to go and get a blood workup done — only the paperwork hadn’t been handled properly up front. So I had to go back to radiology, where they faxed paperwork to reception who then emailed whatever they needed to email back to the blood draw lab — which was across the hall from radiology.

The technician was lovely and kind. She understood my fear of needles, and was quick and gentle. I thanked her for being kind, and she was surprised.

By the time I managed to get back to the car, then nurse called and asked me to come back to the office. Although they were technically off-hours, they wanted me back. They HAD THE RESULTS. None of this waiting for a week. Everything was there by the time I got back across town to the office.

There, they did another round of unpleasant exams — which they did with kindness and gentleness.

The short conclusion is that I have a challenging few weeks and months ahead. In the very near future, I have an emergency specialist appointment coming up, possibly today; a CT scan this week. Fast track surgery. After the surgery, we will re-assess and see if more has to happen, and if so, what the options are. I said if I have a vote, and I will be vocal about it, there are certain things I want to happen sooner rather than later, and she said it might have to happen that way anyway, so it’s a good thing I’m willing to go even consider it. She’s also worried that I’m joking too much and not processing enough.

I shed some tears early on — and the doctor reassured me that it wasn’t my fault and I’d done nothing wrong. Which, of course, I know intellectually, but emotionally is quite different. But what else can I do except joke around with the technicians and try to make it as easy as possible for all of us to get through it? Living in the terror of it all isn’t going to help me. Acknowledging the fear is one thing, but living in it is something else, and I’d rather not live there. I’d rather keep on keeping on, adjusting as needed on the way.

I was put immediately on a medication to get me through until the surgery can happen, and told to watch for certain symptoms. If I have any of them, I am to go to the ER immediately.

Getting the prescription — CVS tried not to use the insurance, and I had to get the insurance re-run, but then it was all affordable. I’m really glad I switched my insurance — had I been on the old insurance, not only would none of this have been covered, but I wouldn’t even have been able to get in to see the doctor. On the old insurance, any time I wanted a doctor visit, I had to wait 3 months. I’m also grateful that I landed with health care

I’m not sure how much I feel comfortable talking about the details of all this, although you can be damn sure I’ll be talking about health care system issues along the way. Some posting might be a bit erratic, and I may pull back on a few blogs , and I apologize in advance. I’m going to try to get ahead on as much as possible.

I’m worried about money. I’m already living too close to the bone, and I was just starting to land opportunities to fix that — I HAVE to, because I have to move later this year, and I may need a new car. If all I’m worried about is money, I won’t have the emotional or financial resources to get well.

The medication started working right away. If they had started me on it earlier in the day, the day might have not been quite so traumatizing. I do want to emphasize how kind everyone except a couple of admin people were along the way. Plus, for the first time in my life, I feel like I have medical professionals that are on my side.

My client told me not to come in today, but I want to go in early and get ahead on a few things.

I wrote the review and sent it out; went to the office. I am waiting to find out when my specialist appointment is today.

I would appreciate any good thoughts you could send my way. I don’t have the support system here that I had in the Broadway community, and being without them scares me — although some of them will support me every step of the way from wherever they are.

Peace.

Published in: on February 11, 2020 at 10:20 am  Comments (2)  
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